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  5. Down Syndrome Australia

Organization

Down Syndrome Australia

Down Syndrome Australia is the national peak body for people with Down syndrome, their families, and supporters, established in 2011. It advocates for social inclusion and policy change, coordinates Australia's state and territory Down syndrome associations, and provides resources for individuals, families, educators, and health professionals across the country.

Family-LedNationalIntellectual & Developmental Disability

About

Down Syndrome Australia was established in 2011 as the national peak body representing people with Down syndrome across Australia. It works as a federation with state and territory Down syndrome associations, coordinating a national voice on key issues including education, employment, healthcare, and NDIS access. The organisation's national headquarters are based in Abbotsford, Victoria.

What They Do

Down Syndrome Australia influences policy and public attitudes through advocacy, research, and awareness campaigns. It develops and disseminates resources for families, educators, and health professionals, including evidence-based guides on learning, communication, and health. The organisation collaborates with government at all levels on matters affecting people with Down syndrome and represents Australia in international Down syndrome networks.

Who They Serve

Down Syndrome Australia serves people with Down syndrome across all stages of life — from newborns and children through to adults and older Australians — as well as their families, carers, support workers, educators, and medical professionals. Its work is grounded in a vision of an Australia where people with Down syndrome are valued, reach their potential, and enjoy full social and economic inclusion.

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Location

Melbourne, Victoria, Australia

Serves: National

Key Facts

Leadership
Family-Led
Type
AdvocacyEducationPeer Support
Ages Served
All Ages

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